Mary’s Experience in the Asheville, NC GyroStim for Treatment of MdDS
In June of 2009 I was enjoying my day like any other day, and then all of a sudden the motion hit me like a ton of bricks. There was rocking, swaying, and tilting; and I was terrified. What was happening to me? Thinking these symptoms were just temporary, I didn’t seek medical advice. After months of not being able to function correctly, I decided it was time to go see my ENT doctor. He didn’t have any idea of what was going on with me, and his reply was “You’ll just have to live with it.” Of course hearing those words devastated me, but obviously the doctor didn’t know me well enough because I don”t give up. Little did I know that this would lead to years of my beloved husband taking me to doctor after doctor with every visit ending the same of not having a diagnosis.
There was a doctor in Memphis, TN that thought he could help my symptoms by injecting steroids into body and into my right ear drum. Sadly, this treatment did not work, and I was not informed that having that many steroids put into my body could cause diabetes. Soon after that visit I became a type 2 diabetic. Very irritated at this point, I found a doctor in Indianapolis, IN that figured I just had fluid behind my right ear, and he thought that putting a shunt in would help. Still no symptom relief.
After determining that the shunt was not working, he thought that I had an infected nerve that was telling my brain that I was moving. He informed me of a surgery where there was a 90% chance of me being well again. Just hearing those words made me schedule for the surgery. My skull was cut open, and one of the nerves in my head was clipped. Months of recovery passed by, and I still had yet to see a difference. I called multiple times only to be told to keep giving it more time. More time passed by and still…nothing.
I found a lady in Cleveland, OH that did some testing, and figured I had migraine related vertigo. She prescribed me some medication, but guess what? STILL NO DIFFERENCE! At this point I decided to purchase a computer to do research myself. After months of research, I came to the conclusion that I had Mal de Debarquement syndrome (MdDS). Researching more about the disease lead me to read something that I didn’t like…there was no cure. I set a goal to find one.
I found another doctor in Cleveland, OH that finally realized what I had, and he officially diagnosed me with MdDs. I thought that he would be able to give me some sort of road to recovery, but I was disappointed when all he told me was that there was no cure and I would have to live with this the rest of my life. Leaving the office crying, I was still determined to find a way to defeat this.
I followed a doctor on FaceBook that specialized in MdDS, and he was doing his practice through Chicago, IL. Still on the hunt to cure myself, I scheduled an appointment with him and got on the road again. Sadly, he told me everything that I had heard before. I mentioned to him that I had found this treatment in NYC, but he lead me to believe that it was a waste of my time so I didn’t bother going.
In January of 2018 I came across an article that caught my attention. I began to learn about the GyroStim being used to treat this disease. I was so excited! This lead me to meet Cindy Beagle. I read on her blog, Rocking In The Wind, about how in 2017 the GyroStim treatments were a success for her. I immediately called her and she began to tell me what her symptoms were and how much the treatments had given her her life back. With her having the same symptoms I had, I was anxiously excited to see if the treatments would help me. I knew I had to give it a try.
In February of 2018 I was headed to Asheville, NC to meet Dr. Kim Fox. I was so happy to meet her! The knowledge that she has on MdDS is outstanding. She suggested that I do 20 treatments in the course of two weeks. I was nervous at first, but after my first treatment I realized that it was a piece of cake. After about 10 treatments I could tell that my rocking had greatly reduced, and that my balance improved by 80%! After the last 10 treatments my rocking had improved by 90%, and I was thrilled! There was no swaying, and my balance was back by 100%! After living with MdDS for 9 long years, I can finally say that I have some relief.
Written and Contributed by: Mary Gray