Caring Enough To Share

Life – One minute it’s great. You are planning your dream vacation or things in your life are just so good all you do is thank God daily for all the Blessings he has given you and your family.

Then you take your dream cruise, a flight you booked months ago to paradise, or you did nothing at all. You simply went to bed and woke up to a feeling of rocking, bobbing, swaying, trampoline walking, nausea, can’t think, concentrate, can’t walk, can’t shower and the can’ts go on and on. Now you say, what the hell happened. You still say your prayers and thank God for all his Blessings, but now you are asking Him to heal you.

A day goes by and you think I’ll be better tomorrow. Tomorrow comes and you thinking well one more day, I’ll be fine. A week then a month and now you are getting scared. What do I have. You make an appointment with your doctor who schedules an MRI of the brain and he refers you to an ENT. The MRI is negative and when you describe your symptoms to the ENT he/she says you have Vertigo. Gives you a script and says I’ll see you back in a month. In the mean time these doctors look at you like you have 4 heads. You did not describe Vertigo which is spinning but that must be what you have. You take the pills, return as directed and he/she refers you to neurology.  The Neurpologist says, looking you like you have 4 heads again, lets refer you to psych because you must be crazy. In the mean time you are suffering. Work, family and others are tired of hearing you complain. The doctors who gave you meds that can’t just be stopped, tell you they can’t prescribe to you anymore. They don’t tell you but they now think you are a drug seeker. You look for help going to doctor after doctor but get no help. In the mean time work is getting harder and your employer is becoming more impatient. Your spouse is picking up what he always expected you to do. So now your marriage is strained. Your life begins to fall apart and before you know it 5 years, 10 years have gone by and you begin to think everyone would be better if you were not here.

That’s why I CARE. That’s my story. Many doctors with no answers and then because of Gods amazing Grace you read a story about a man who had a stroke. He was using a GyroStim to help with balance and cognition. I contacted GyroStim and got a listing of locations. I live in NC and the only location in NC was in Asheville.  I called the clinic and received a call back from Dr. Kim Fox a Doctor of Physical Therapy. We talked for nearly 2 hours. She said while she had treated MdDS with vestibular rehabilitation therapy for 10 years, she had never treated anyone in the GyroStim for MdDS.  We discussed the risks and possible benefits and after understanding those, she said she would only do the treatment as a case study. Meaning she would write a paper about the outcome. I was scheduled to go up to Asheville on May 5, 2017. That was the first time since I had found a neurologist who didn’t look at me like I had 4 heads that I had a doctor who throughly understood MdDS. After a week of therapy I was 90% better. Experimental, needing more research, not a cure, this was a treatment that had promise. I returned in July for additional treatment because I wanted that 10% back too. I felt I got it but then realized I had a new problem. I was having a hard time adapting back to life as it was before MdDS.  Slowly. That is the answer. MdDS still lurks in my brain waiting for its opportunity. So I work harder to keep it away knowing it’s looking for its opportunity.

Now I must say my story does vary. I have a loving, kind and very patient husband. I lost my job, lost some friends and gained anxiety and depression. But the GyroStim gave hope and I have to share because I CARE about YOU!!

Published by

Cindy Beagle

I am a 56 year old who suffers with Central Vestibular Disorder and possibly Mal de Debarquement Syndrome (MdDS). Central Vestibular Disorder is a central nervous system disorder. MdDS otherwise known as disembarkment syndrome is a type of vertigo except I don't spin I ROCK. The Fatigue is overwhelming and there are many other symptoms but no cure.

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