Life After MdDS

Since writing this, Dr. Fox is currently treating 2 more MdDS making it 6 patients she has treated in the GyroStim. Two achieving remission, one no change, and one is still in treatment and her symptoms are at a lower level.  The two currently being treated are improving and finding their symptoms are being reduced with this treatment.  So now I find it is time to publish this article

In May 2017 I went to the Asheville Balance and Vestibular Center for treatment in the Gyrostim for Mal de Debarquement Syndrome (MdDS). As the first patient being treated in the Gyrostim by Dr Fox, she and I had no idea if things would get better or worse. Well things really got better. Left with only a mild up and down bob, we made a plan for me to return in July for an additional week of treatment. In the interim, patient #2 was treated in the Gyrostim achieving zero symptoms and returning from a 3 hour drive home with continued zero symptoms. This is all so promising for patients with MdDS. But, the 2 of us realized that being normal can be a challenge too. We were sick with MdDS for 10 and 4 years respectively. We both returned home not knowing how to handle a life of normalcy. What would we be able to do without aggravating and reversing what was achieved by Dr Kim Fox and the Gyrostim. How would we live again. Not sure if we could return to the society we excited so long ago.  So now the anxiety of having MdDS has shifted to the anxiety of not having MdDS. The answer may lie in how much support we have in our home and with family and friends. We cannot allow ourselves to be pushed to do things we are not ready to do. If we say no, it’s not because we don’t want to, it’s either because we can’t or we are not ready to venture out to that point yet. Baby steps. We must baby step our way back to normalcy. Ten minutes of a walk, 5 minutes in a grocery store, etc.  It’s now been 3 months for me and I have been able to be in a grocery store for no more than 30-45 minutes. I am riding my 2 wheel bike now up to 6 miles but started by just riding to the end of our road.

Moral of the story is be patient. Normalcy will return in the form of habituation. Don’t push yourself and if you do know your limit. Listen to your body. Rest, rest, rest. Rest is so vital to recovery. Be kind to yourself. Lobby support from your friends and family. You will very quickly learn, if you haven’t already, who are your true friends and loved ones. Those who understand and pray for us daily. Those who don’t and talk behind our backs feeling that we were never sick. Love on the people who loved on us as we struggled daily. Thank them for their compassion and support.  No one gets it until they get it.

http://www.ashevillebalanceandvestibular.com

Gyrostim.com

 

About Cindy Beagle

I am a 56 year old who suffers with Central Vestibular Disorder and possibly Mal de Debarquement Syndrome (MdDS). Central Vestibular Disorder is a central nervous system disorder. MdDS otherwise known as disembarkment syndrome is a type of vertigo except I don't spin I ROCK. The Fatigue is overwhelming and there are many other symptoms but no cure.

15 Responses

  1. Heather Karpin Shachtman

    How long did you suffer. I’m nearly five years in and so desperate to get back to normal abd raise my three girls and be happy without living dizzy. I don’t rock but feel brain fog, dizzy and am very Florescent light sensitive.

    Like

      1. Heather Karpin Shachtman

        I’ve done five. I can’t handle another five. I had a wonderful life just raising lids and being a happy person. Are you willing to talk w me? My symptoms arecattpicsl (no rocking) but dizzy and all else. I’m fighting for my family. Sick of crying.

        Like

  2. beatingthisillness

    Thank you so much Cindy for your blog.. how are you doing?  Are you MdDs free….  Youre an amazing person.. thank you so much for your informative information…  Teri Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love… 

    From: Not Your Typical Vertigo To: teri.munyon@sbcglobal.net Sent: Wednesday, August 16, 2017 5:16 AM Subject: [New post] Life After MdDS #yiv6748464720 a:hover {color:red;} #yiv6748464720 a { text-decoration:none;color:#0088cc;} #yiv6748464720 a.yiv6748464720primaryactionlink:link, #yiv6748464720 a.yiv6748464720primaryactionlink:visited {background-color:#2585B2;color:#fff;} #yiv6748464720 a.yiv6748464720primaryactionlink:hover, #yiv6748464720 a.yiv6748464720primaryactionlink:active {background-color:#11729E;color:#fff;} #yiv6748464720 WordPress.com | Cindy Beagle posted: “Since writing this, Dr. Fox is currently treating 2 more MdDS making it 6 patients she has treated in the GyroStim. Two achieving remission, one no change, and one is still in treatment and her symptoms are at a lower level.  The two currently being treat” | |

    Liked by 1 person

      1. leftyinatlanta

        Cindy,

        How many Gyrostim treatments did you do per day and what was the average time per treatment? I start next week in Atlanta. My symptoms aren’t as severe as you have mentioned but I’m hoping I can knock out this subtle sense of motion I feel when sitting idle or laying still. Thanks again for all your info.

        Liked by 1 person

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