Once in a while I have a good day, but most are very difficult. This week has been very difficult, but I continue to try to push through no matter. Upon getting up in the mornings I go ahead and make the bed, otherwise it might not get done. Just making the bed may sound easy to most, but to those of us with balance disorders it is not. The reason is your movement is from one side of the bed to the other which is sort of like being on a Merry-Go-Round for us. After the bed is made, we have to sit and rest to settle the movement which for me is like being on a boat, bobbing, sway and rocking. After some rest, I then tackle picking up clothes and/or dishes. To most that seems awfully simple. Aha, not to those of us with balance issues. Moving up and down again mimics the boat movement and gets the movement going again. It is really not the in motion that bothers me, but the stopping of the movement that is most bothersome. Standing is the worst so I sit until I can move again. As you can imagine the reason movement does not bother me is because I can move with the boat movement.
The simplest of tasks are so difficult. I’ve often wondered if I will ever work again. I’ve thought if only I could just babysit a newborn, as I would not have to chase them around. But, I think of the safety of the child first. If I am holding the child and fall, I would be crushed if I hurt someones child. I have thought since I love to drive as the symptoms do go away while driving, that I could deliver papers. But I could not get through an interview because I rock so very badly until I actually get in the car and drive. Come to a stop light, I am back to bobbing, swaying and rocking again.
So the moral of this story is do not take the simple things of life for granted. I pray every day for a cure and to do those simple things again.