September 2, 2013

This is the beginning of my personal blog in which I will try to share the disorder for which I was chosen to endure.  I was diagnosed in 2011 with Central Vestibular Disorder?  But, this year discovered the more correct diagnoses may be Mal de Debarquement Syndrome.  For those of us who have MdDS, life is forever changed.  We rock, some more than others, and we tire with very little effort.  Our days are filled with what ifs and making plans we may or may not accomplish.  Getting out of bed can be an accomplishment.  Getting a shower, making the bed and getting breakfast can wear us out to the point of needing to go back to bed.  Symptoms include: Difficulty with balance, fatigue, inability to concentrate, comprehension, headaches, anxiety, intolerance to busy patterns, nausea, light sensitivity and many others

This is day one. More to come as this is all I can accomplish for today.

About Cindy Beagle

I am a 56 year old who suffers with Central Vestibular Disorder and possibly Mal de Debarquement Syndrome (MdDS). Central Vestibular Disorder is a central nervous system disorder. MdDS otherwise known as disembarkment syndrome is a type of vertigo except I don't spin I ROCK. The Fatigue is overwhelming and there are many other symptoms but no cure.

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